Welcome to the CdLS Awareness online support group!

This site was created to provide support, advice and friendship.  We want you to have a place to share your experiences and learn from others.

This site’s motivation came from the CdLS Awareness Facebook page that was started almost a year ago.  The enormous response received, made us realize the importance of creating this site.

This site is solely built from “hands on” experience, as we have a child in our immediate family with CdLS.  We are not here to give expert or medical advice; but, we will direct you to the right resources.

So many children have CdLS and are living without a diagnosis.  It is important for each and every one of us to help spread the awareness.

You can start by joining our CdLS Family

Support Group.

You can also visit us @  http://www.facebook.com/CdLSawareness.  Help to spread awareness by hitting the “like” button on our page!

******We have so much more coming to our site. New information and pages will be added so check our site often.  We are looking for families that are willing to share their child’s story.  You will receive a private page where your child’s story and pictures will be there for the world to see.  Your story can help another family!   Please email Jill @ ADMIN@CDLSAWARENESS.ORG if you are interested!

* Some links on this website may be directed to information provided by the internet and not by CdLSawareness.org*